Help Ivy…
A little girl needs your help. In the last couple of days I have been following this story around the internet on several of the blogs I read and it is time that I take the time to also put it out there here, so that those who might not have seen it elsewhere, get a chance to help this little girl in need.
Tiff, whose blog I have only discovered in the last couple of days (although who I know comments on a lot of blogs I read so it is not the first time we have come in contact) needs our help to help her 2 year old daughter Ivy who is pictured below (and the photo was taken by her mum, Tiff)
Little Ivy is very sick. She has Pemphigus. There is a treatment that could help her but the Australian National Blood Authority has denied Ivy`s parents request to receive this treatment.
The following was taken from Veronica`s site here who has started a petition for us to sign trying to make the Australian National Blood Authority stands up and takes notice and stops denying this beautiful little girl the right to a normal life.
***********************************************************************
Ivy is beautiful and Ivy is sick. Ivy is only 2.
And yet, at age 2, Ivy has seen the inside of a hospital more times than anyone should have to. Ivy has a rare immune deficiency IgG. Because of that, she has Pemphigus which is an autoimmune response to the IgG [please note, these are photos of Ivy’s pemphigus blisters and they may be a little graphic for some people].
These are horrible conditions that no adult should have to deal with, let alone a child.
Ivy is currently on Prednisone and Mycophenolate to help control her symptoms and blistering; however, these drugs suppress her immune system, on top of the deficiency.
Ivy’s mum says “…she was never good at mounting a response to infection but the meds make it worse.”
She frequently ends up in hospital on IV antibiotics, just to help control the infection in her ears that never seems to completely disappear. She cannot be exposed to a simple virus in fear that it will land her back in hospital for days at a time.
She can’t go to the playground to play.
She can’t attend playgroup.
She can’t head to the supermarket with her mother.
She might never be able to go to regular school.
She is only 2.
However, there is a treatment that would give Ivy a good chance at normal life.
It’s called IVIG (intravenous immunoglobulin) and it is a transfusion of immune cells that would bolster Ivy’s own immune system and help her fight infections in a normal way.
Think about it, a chance at a normal life. A life that doesn’t involve frequent hospitalisations.
Unfortunately, the officials at the Australian National Blood Authority have denied the request for Ivy to have this treatment. This treatment that could very well keep her out of hospital. So far, all appeals have been in vain.
As Ivy’s Mum says on her website:
“My little girl is going to have a life of hospital admissions and illness, some chronic, some life threatening, because some guy in an ivory tower decided she could survive without this medication.”
How is this fair?
What if it was your child? What if it was your sister’s child? Do the rules change for daughters of the officials? How come someone with a big stamp gets to say yes or no to this little girl’s chance at a normal life?
It shouldn’t be like this.
All I am asking for is 2 minutes of your time. If you could just head over here and sign our petition, we might be able to get enough support to convince the National Blood Authority officials to change their mind.
Ivy is only 2. She deserves a chance to be normal.
Please, a minute of your time could make all the difference for Ivy.
Sign Petition
Between the***** & ***** was taken from here
*********************************************
I ask anybody reading this to take the time to sign this petition. And if you have a blog, to help spread the word so that we can help this little girl and her family. Please visit Tiff or Veronica`s site for more information and to keep up to date with the happenings in this case.
Go to the petition here. There were 758 signitures at the time this was published.
Thank you.
Popularity: 7% [?]
Similar Posts:
Thankyou so very much for helping to spread the word.
Thank you so much for this. It means so much to us, that people would put themselves out there for our girl. You are wonderful!
Lulu, what a horrifying story for Ivy and her family. I hope they get approval quickly so she can lead a normal, pain-free life.